Above and beyond

This is a guest blog from our Executive Director of Support and Development Anna McEwen who writes:

Yesterday I visited Paula and Ian who live in Beckton, London.  It was like going to visit old friends as I’ve known them for many years in different roles.

Ian moved in to live with Paula and her family in 2000 and Paula has gone through many incarnations of regulation including registering as a small care home before joining Newham Shared Lives scheme when it was established in 2009.  When Ian first moved in, after his former foster mother died, Paula’s children were both under 5 – now her daughter is a student nurse and her son has just begun a scholarship playing basketball in America.

It was wonderful to see them both, but this time the purpose of my visit was to hear from Ian’s health journey of the last year.

It was June 2015 when Ian began to feel unwell, he had a high temperature and wasn’t eating – something that is really unusual for him.  So, Paula took him to the GP who initially thought it was a viral infection. When he got no better, Paula took Ian back to the GP who sent him for blood tests.  Still no improvement and Paula knew something was badly wrong by now, Ian was tired, lethargic and his temperature kept spiking.  The next time he went back to the GP he was fast tracked to hospital where he underwent tests in A&E before being admitted.  He ended up staying in hospital for one week during which time he had an endoscopy operation to unblock a bile duct.  Paula spent all day every day in hospital with Ian who told me it was a bit scary being in hospital.  Paula was there from 9am until 8:30pm each day so that Ian knew that he just had to sleep for the night and then she’d be back there for him.

Paula and Ian
Paula and Ian

Once the operation had been done, Ian initially felt much better and they both had a sense of relief.  Unfortunately, they were then told the news that the tissue removed in the operation and sent for biopsy was cancerous.

For the next couple of months, Ian went through a number of tests and scans and was then referred to a specialist at the Royal London hospital.  Paula talks about the consultant being a wonderful man who always took the time to talk to Ian, explain things to help Ian understand and then performed the major operation to remove Ian’s gall bladder and tip of the pancreas.  Again Paula spent each day in the hospital with Ian throughout the 10 days he stayed there.  He was initially very weak after the 5 hour operation and spent time in intensive care, but the hospital put in extra support for Ian in those early days.

Ian was also visited and blessed in hospital by Father Bob, from Ian’s local catholic church, who has been supporting Ian and other disabled people to visit Lourdes each summer for the last 15 years.

Following the operation Continue reading